Beelieving in a Cure for NKH 5k Walk/Run
WhereWest Union, OH - Adams Co. Fairgrounds
WhenAugust 5, 2017 - 8:30 AM
What3.1 miles (5K)
The course is a flat, road course that will begin and end at the Adams County Fairgrounds, located in West Union, OH.
Individual Prices: Pre-Registration: $30.00. Late Registration: $35.00.
Team Prices: Teams of 5 or more (must register together)- Pre-Registeration: $25.00 per person. Late Registration: $35.00 per person.
All age groups welcome! Kids welcome! Teams welcome!
Women: 12 & under, 13-15, 16-19, 20-29, 30-39, 40-49, 50-59, 60-69, over 70
Men: 12 & under, 13-15, 16-19, 20-29, 30-39, 40-49, 50-59, 60-69, over 70
Prizes will be awarded to the 1st place race winners per age division. Overall male and female winners will also receive a prize. Each participant may receive only one award There will also be recognition given to the largest group/team to participate.
Why are we racing for a cure? Please read our story:
Carshall James Gardner was born to Jared and Chelsea Gardner on Sunday March 2, 2014. He was 7 lbs. 6 oz. and 20 inches long. He was beyond perfect. Over the next couple days, Carshall became very lethargic and ended up being transfered to Cincinnati Children's Hospital. On Thursday, a team of doctors met with Carshall's loving parents, and gave them the news that Carshall had a metabolic disorder known as Non-Ketotic Hyperglycinemia (NKH). This disorder is untreatable. Carshall's parents were forced to make the most heart breaking and toughest decisions of their lives, and Carshall was removed from life support that night. Carshall was held by his daddy and mommy for the next 18 hours, and after 18 hours, he passed away on Sunday March 9, 2014, on his mommy's chest at only 7 days old. His family has vowed to keep his memory alive and to help Bee the cure.
NKH, is a metabolic disorder in which sufferers are unable to make an enzyme needed to break down or metabolize glycine. This is a genetic defect, meaning that both of Carshall's parents were unaffected carriers and didn't know it. At this point, there are no cures for NKH. Dr. Johan Vanhove is the one doctor who dedicates his time to NKH research. He is so dedicated to helping our kids and coming up with better treatments , and a cure. Most children with this disorder die before toddlerhood, and those that do survive are often severely disabled, both physically and mentally with uncontrollable seizures.
While Carshall's fight with this mean disorder is over, his parents and family members have vowed that their fight with it will never end. While Carshall's not here, his journey is not over. We promise to make people aware of this rare disorder that stole our baby boy from our family. We are forever Beelieving in a Cure against NKH!
We will donate proceeds to the NKH Foundation and to Dr. Johan Vanhove to further research to fight this disease and to find a cure! WE BEELIEVE!